
Useful Research Ethics Links & Resources
- The Tri-Council Policy Statement Ethical Conduct for Research Involving Humans
- The National Council on Ethics in Human Research (NCEHR - Canadian)
- Canadian Association of Research Ethics Boards
- CIHR: Best Practices for Protecting Privacy in Health Research
- CIHR: Secondary Ues of Personal Information in Health Research: Case Studies
- Principles for Developing a Canadian Governance System for the Ethical Conduct of Research Involving Humans (PRE)
- A Framework for Ethical Decision-Making
- Applied Ethics Resources on the WWW
- Humanities and Social Sciences Federation of Canada: Report on Implementation of the TCPS
- McMaster "Travel for an Elective / Field Trips" policy
- The Belmont Report (U.S.)
- The Nuremberg Code (International)
- Helsinki Declaration (International)
- CIOMS - (International)
- 45 CFR 46 (U.S. Regulations)
- National Research Ethics Service - UK
- National Health and Medical Research Council: Human Research Ethics Handbook (Australia)
- OHRP: International Compiliation of Human Research Subject Protections
- SIDCER: (WHO - Strategic Initiative for Development Capacity in Ethical Review)
- World Health Organization: National Bioethics Committees contact information
- UNESCO Unit on Ethics of Science and Technology: “Global Ethics Observatory”
- Harvard School of Public Health: Global Research Ethics Map (GREMAP)
- Guidance on Ethics and Equitable Access to HIV Treatment and Care - UNAIDS
- NeuroethicsNet
- Ethics in Healthcare - McMaster University (Bioethics Interest Group)
- Information and Privacy Commissioner - Ontario
- Ethics tips from the History Department at Concordia University in Montreal
- USA link: Oral History Association
- 25th Anniversary of the Belmont Report
- Ethical & Legal Aspects of Human Subjects Research on the Internet
- Charles Ess and the AoIR Ethics Working Committee: Ethical Decision-Making and Internet Research
- CUNY: Guidelines for Internet Research with Human Subjects.
- E-BEST : The Evidence-Based Education and Services Team is the research service for the Hamilton-Wentworth District School Board. Their Ethics Research Process
- Social Planning and Research Council of Hamilton
- Community Dispute Resolution Services of Hamilton
- Bay Area Leadership
- Settlement and Integration Services Organization (SISO)
- myhamilton.ca
- Six Nations Council
- North Hamilton Community Health Centre
- South West Ontario Regional Research Ethics Boards Meetings
Aboriginal Research Ethics Guidelines:
- McMaster Aboriginal Students Health Sciences - Resources -
- Indigenous Research Protections Act
- Akwesane Good Mind Research Protocol
- Kahnawake Schools Diabetes Prevention Program Research Code of Ethics
- Protocols and Principles for Conducting Research in an Indigenous Context
- Mi'kmaq Research Principles and Protocols
- NAHO: National Aboriginal Health Organization
- The Role of Community-Based Participatory Research
- Section TCPS2 Chapter 9: RESEARCH INVOLVING THE FIRST NATIONS, INUIT AND MÉTIS PEOPLES OF CANADA
- Model Tribal Research Code
- A Quick Guide to Research in the United States and Alaska Involving Aboriginal Peoples
- Mataatua Declaration on Cultural and Intellectual Property Rights of Indigenous Peoples
- CIHR Guidelines for Health Research Involving Aboriginal Peoples
- Hopi Cultural Preservation Office: Protocol for Research, Publications and Recordings
- ACADRE: Ethical Issues in Research with Aboriginal Communities
- Draft United Nations Declaration on the Rights of Indigenous Peoples
- Ethical Guidelines for Aboriginal Research - CIHR sponsored conference at Six Nations 2005
Nunavut, NWT and Yukon Territory Research Ethics and Scientific Licenses:
- Qaniupitali: Nunavut Inuit Health Survey 2007 - 2008
- ACUNS: Ethical Principles for Conduct of Research in the North
- Negotiating Research Relationships: A Guide for Communities (Inuit Tapiriit Kanatami)
- Negotiating Research Relationships with Inuit Communities: A Guide for Researchers (Inuit Tapiriit Kanatami and the Nunavut Research Institute 2007)
- Northwest Territories scientific licensing requirement for researchers
- Nunavut Research institute for scientific licensing requirement for researchers
- Yukon scientific license resources: Links to the government dept and the guidelines document | Science Research Guidelines | Scientists and Explorers |
Research with Children and Adolescent Populations:
- Justice for Youth: Legal Milestones
- NCEHR: Facilitating Ethicial Research: Promoting Informed Choice Chronological Age
- United Nations: Convention on the Rights of the Child
- Best Practices for Research Involving Children and Adolescents
Community Based Participatory Research
http://www.vimeo.com/2780761 :This video features the voices of community
members who have worked on community-based research projects in
the Toronto area. They discuss how and why they became involved
in research, what they did, as well as some of the benefits and challenges
of this kind of work.
The video was produced by Lisa Campbell for the Toronto Commuity-Based Research
Network (TCBRN). Supported by funding from the CBR Working group of the Health
and Learning Knowledge Centre of the Canadian Council on Learning
- Poynter Centre Resources in Ethics
- Public Responsibility in Medicine and Research (PRIM&R)
- Office of Human Subjects Research (NIH)
- Office for Human Research Protections (OHRP)
- McMaster Privacy Tutorial - For Retrospecitve Review of Health Records
- McMaster Research Ethics Tutorial
- Tri-Council Policy CORE Tutorial
- Quebec Ministère de la Santé et des Services Sociaux (MSSS)
- Harvard University: Ethics in International Health Research Tutorial
- (National Institute of Health) computer-based course for Protecting Human Research Participants
